Hailey

Hailey was diagnosed with a rare genetic disorder, Jarcho-Levin Syndrome, when she was a few days old. It’s characterized by severe malformations of the chest cavity, ribs and thorax, thus affecting her ability to breathe. When she was six months old, Hailey was diagnosed with Septo Optic Dysplasia. It causes blindness. Although life has been full of challenges for Hailey, she has persevered. She’s a part of the Gifted and Talented program at her school and she has competed in three Oklahoma Braille Challenges. She is also fluent in speaking and reading the Cherokee language. She was the first blind child to ever compete in the Oklahoma Native American Youth Language Fair. Hailey continues to defy the odds by walking and breathing on her own. She aspires to become an inventor.